Thoughts on… Involuntary Rest
. It sucks. There. I’ve said it. I hate being injured. I hate it when my body doesn’t cooperate with my mind. I have miles to run, weights to press, and calories to burn. Lying…
Professor X
Vacation in Vegas
I did it! I just completed my first trip to Vegas. In winter. With kids. With a chronically ill spouse. For an in-law family reunion. I had a great time, although I really, really wish…
Wink: a story of community love
Background: Wink Yesterday, my husband turned forty. Any decade birthday can be a big deal, but this one was especially so. You see, in the beginning of his 30s, my husband (Wink) had everything going…
Just keep swimming…
With the news story of Robin William’s death taking over the media, and his wife’s statements, I thought this would be a good time to put into words some of my thoughts. These are the…
A good dad vs an amazing dad
It is very hard work to be a good dad under any circumstances. But when you are literally crippled by pain day in and out for years, hazed by medical conditions, and unable to work…
Dear Your Honor (again)…
Dear Your Honor, The last time I wrote to you it was to state my husband’s history of chronic disability and illness.ย You (and the entire system) has yet again denied his plea for disability….
Dear your honor…
A letter to the judge regarding my husband’s upcoming disability hearing: I am writing this letter in regards to my husband, Professor X, who has become quite disabled in the last 10+ years. I…
Pain-I-Am
A poem in honor of Professor X, inspired by Dr. Seuss’s Green Eggs and Ham. I-am-pain. Pain-I-am. That Pain-I-am That awful pain! I do not like Its horrid drain. Do you like Relentless pain? I…
How are the Supers doing?
I am about to post a vent and a rage. A sob and a woe-is-me. But I have to get if off my chest. Please stop reading immediately if you have negative things to say…
More Parts
I’m not a huge Valentine’s fan. Don’t get me wrong, I loves me some chocolate. But Professor X and I don’t go out and do anything. No romantic get aways. No romantic candle-lit dinners. I’ve…
The worry of having a spouse in constant pain
Disclaimer: This post contains affiliate links. I turned to my husband and read aloud: “Mostly, however, [they] are just immensely lazy. They spend up to twenty hours a day asleep, normally emerging to look for…
Birthday joy for Prof. X
My husband’s birthday is this week. And a celebration of his pretty sucky life right now isn’t exactly what he wants to do. So I took the liberty of emailing 100 close friends and family…
Multiple Choice
You wake up at 5am to find your husband (still up) writhing in pain with tears in his eyes. Do you: a) call an ambulance b) ignore (he’s totally faking) c) gently kiss him on…
Just when I thought it couldn’t get worse…
I was dancing (aka raising the roof) with students in the hall to “Celebration” on the last 5 minutes of the last day of school. I jumped backwards onto a coat rack, felt a pop,…